Friday, July 17, 2009

The New House

So, after leaving Denny's and The Breakfast of Champions, we drove for the next 8 hours or so and went straight to our New House. I was looking forward to showing the kids, since they hadn't seen it, except in pictures.

Well, we drive up and the first thing I see is this...



Our house is the one you see in the distance, behind all the weird, dog-house-looking, sewer-substation crap. All I can think of is "What the hell did we agree to buy tomorrow?".

Actually, the view I had (from the inside of our minivan) was all sewer substation, because where I took this picture is at a higher vantage point than the one we enjoyed in the car. We did not get out of the car because we could still see the previous owner moving out their stuff.

So, off we went to the Doubletree Hotel for our wonderful 4 night stay.

Do I sound bitter and sarcastic? Because I am! It was dreadful! Small, with expensive, slow internet, and nasty food for breakfast, served on dirty dishes by sullen, impatient staff.

I couldn't wait to get out of there, let me tell you. If I hadn't been in such a state of shock from moving, I would have found my mojo and gotten us the hell out of there. But Dave was like, "If we cancel our stay early, they'll charge us."

Now, from the vantage point of a non-sleep-deprived and relatively calm Mom, I would say to him, "I'd like to see them try."

But at the time, I was so tired, irritated, shell-shocked and worried about our move-in that I just agreed with him.

Crazy, huh?

Well, five days later, the moving truck shows up around 11am, only to discover that they can't fit the truck up the driveway.

As you can perhaps see by the picture, it's an insanely long driveway. And curvy. So, after renting a smaller moving truck, they begin moving our stuff into our new house.

I think we had everything in, and somewhat assembled by 9:30pm. The kids passed out on the couch in the basement at 8pm. And I think I got to sleep around midnight.

But, we are now in our new house and it really is very nice.

It still doesn't feel quite like home (whatever that is), but I can see where it will in the future.

I've got everyone registered for schools, and we having all sorts of testing in the coming weeks for each of the boys, as well as Blythe, to help them with their placement for school in the Fall.

So, now, it's all about enjoying our Summer. And vantage points :)
Remember, perspective is everything.

Saturday, July 11, 2009

Back in the US of A and, by the way, I'm Never Moving Again.

So, we finally drove away from our house in Toronto at 10:30pm on the evening of June 24th, and we crossed back over The Border just after midnight on the 25th. Oh. My. God. I didn't think we were ever going to get out of that house.

In the words of Blythe Grace at 7:30pm as we were taking another pee trip after driving around the neighborhood for the fourth time, "These are the Slowest Movers Ever!"

I shushed her immediately, although I don't know why. The only way they could have gotten any slower was to just leave...or drop dead there on the lawn. It was a long day.



We stayed at the Marriott in Buffalo, and hit the road again after a nutritious breakfast at Denny's. I seem to remember Kieran had chicken nuggets and juice, Blythe had hot dog and Cameron had pancakes and sausage. I tried to negotiate for more of a breakfast-type meal, but as anyone who has tried to negotiate with terrorists will tell you, you mustn't tell them "No." You must keep the lines of communication open, or else the consequences may be disastrous. That, and I just wasn't up to being That Mom in the Dennys in Buffalo that morning.

As we pulled out of the parking lot, Blythie saw this flag and started to tear up a bit.

"Seeing that flag makes me miss Canada, Mom."

I know, Honey. But we've got a lot to look forward to, I promise.
And little did I know how true my words were. There was so much more to look forward to with our move only half done. Lucky me, eh?

Wednesday, June 10, 2009

Cool Excursion for the Week



Okay, so Kiki and I had to go for his fourth RDA today with our RDI Consultant, who happens to live in Peterborough which is an hour drive from our house. So, Lucky Duck that he is, he got to skip school. I was going to take him to school later on when we got home, but he looked at me with such a pleading look on his face, "Please, can we just go home, Mom?" So, being the Total Hardass Parent that I am, I told him "Sure" and we ended up at home after our meeting.

Well, lo and behold, it was actually a stunning day here in Southern Ontario, a little on the cool side in the mid sixties, but I'll take it!!! So, after a quick lunch, I decided we needed to do something fun.

Well, when we first moved her two years ago, I bought a book about fun things to do in Toronto with your kids. I bought a couple of them, actually, but the book I have used the most was this one. It had many cool and different, off-the-beaten-path suggestions to take your kids for a good time, but one that really caught my eye was the Pearson Airport trip.

So we went over to Pearson International Airport to watch the planes land and take off.




Out on Airport Road, in a Wendy's parking lot, there were several "airplane watchers", some of whom had brought their own seating with them. And for the 40 minutes that we were there, more and more arrived. I did a little research after we got home and apparently, all the big jets (747s and up) start to land around 3pm, until 7pm. They just kept coming, these big jets, about one every 5 minutes or so.



They were so close, like a couple hundred feet in the air, and were landing literally across the street from us. It wasn't as loud as I imagined it would be, either, although you tended to feel them before you saw them.




There was a part of me that wondered if this would be even possible at any airports that I have known in the US. Dave assures me that it is, but I must do more research on this when we get back to Philly. And I have to take Blythie.

Next time, with just a little more research, we can have a list of what flights are landing when. Maybe even bring our own seating...



Too, too cool.

Saturday, June 06, 2009

My Thoughts on Biomedical Treatment for Autism

When you first learn that your child has autism, you head out to the library, or over to Amazon.com and you search for books about autism. Nowadays, that Go-To Book may very well be Jenny McCarthy's book. She gets enough press, doesn't she? I've met so many people who absolutely hate her, but I myself am rather ambivalent. She's just trying to help guide us parents out there who are rolling with the punches and don't know which way to go. But, I digress...

Back in 2004, when autism really began to seem a real possibility in my mind as a cause for my son's delays in speaking, the Go-To book was Facing Autism by Lynn M. Hamilton. It was a memoir of one family's struggle with their child's diagnosis with autism and it had lots of steps to take and try to help with the common problems of childhood autism.

I read it very carefully and with much interest. The main problem I had with it was that symptoms and problems she described of a child with autism didn't really fit Kiki.

Kieran was the World's Most Easygoing Baby, and that isn't an exaggeration. He slept like a fiend from the day he came home. I'm talking 13 hours a night, and two power naps of one to two hours a day. He ate well. He was extremely affectionate and loved to be held, cuddled, kissed and rocked. He looked deeply into my eyes and looked and studied everything and everyone around him (at least us in his family). And he never really regressed in any skills. Now, he didn't speak until well after his 2nd birthday, but he never had that regression of acquired skills that you often read about from other parent's accounts of their autistic child's developmental path.

So, the more I learned about the GFCF Diet and Chelation, the more I thought that it wasn't for us.

Then, Cameron was born. And although he was similar enough to Kiki that I knew he was autistic by the time he was 10 months old, he was still very different. He did not eat baby food. Ever. The texture was intolerable to him. He toe walked and was an okay-sleeper (because after Blythe, just about every child seems an Okay-Sleeper, with a very few notable exceptions). He definitely seemed to have more sensory based issues. He has always been a much more stimmy child than Kiki, which is really saying something.

So, Biomedical seemed more and more like it was something I wanted to try for Cam. But, as anyone who has ever tried it will tell you, the GFCF Diet is a BITCH to implement and even more difficult to stick to for any length of time. And it's pretty much the centerpiece of all Biomedical Treatment. You start with GFCF and then take it from there. Because it's all about Inflammation, and the Inflammation in the brain, almost always, begins and ends in the gut. That's the Big Message with Biomedical--Heal the gut and you begin to heal the brain.

But I still wasn't completely on board that it was really for us--that it was really worth my time and energy to implement and commit to. Because it's hard to follow a strict biomedical regime, and don't let anyone tell you otherwise.

Then, this past December, Cam caught some sort of intestinal parasite, Dientamoeba fragilis. I'll spare you the gory details, but it was beyond gross, poor guy. It's a fairly common parasite and not supposed to be a big deal. But what really scared me, was the pattern of regression I saw in Cam while he had this parasite. He became Super Stimmy, and even more echolalic than ever. He stopped responding to his name. I'm not going to sugar coat it--it scared the shit out of me. And since he seemed to come back to normal after a round of oral antibiotics, I decided that Biomedical Treatment was worth more than a second look.

I found a DAN doctor here in Toronto and made an appointment. We started the GFCF Diet. We began extensive testing, of both boys blood and stool and urine. Very, horribly expensive, since most insurances will pay only partly for them, and ours didn't pay any, since our DAN doctor is a Naturopathic Doctor and not an MD. Based on those tests, we started different supplements. We've been adding a new supplement every few weeks. We consult with the doc every six weeks (more often if needed) and tweak stuff here and there.

It's been an eye opening experience.

We've seen differences in both boys, but the most profound changes have been with Cam. He's talking now. Now, to be fair, he was talking before we started biomedical, but it has exploded since January. His speech is so much clearer, and it has so much more intention behind it. His speech is still a far cry from that of a neurotypical 4 and a half year old. I would put it at about that of your average 16 month old. But it's a big change and a welcome one.

Now, I couldn't, and I wouldn't, tell you that his dietary changes have been the soul reason for these changes. Cam gets well over 30 hours of pretty intensive ABA a week, in addition to lots of one and one interaction at home. But I feel confident that Biomedical Intervention has helped. It's been more than worth the effort.

So, if you are at all interested in going that Biomedical Path, but have been too scared or worried that you are slipping off the deep end into the Abyss of The Crazies (which for some reason these loving and caring doctors and parents have been demonized as in the Court of Public Opinion), don't let that stop you.

Educate yourself, find a good and reputable doctor that you have a good rapport with, and give it a shot. I don't think you have anything to lose.

Thursday, June 04, 2009

Tastes Like Love, Without the Heartache!



So, in between carting vanloads of unwanted clothes and toys from our house during the day, I also been traveling downtown to the St. Lawrence Market to Crepe It Up in order to enjoy my favorite item off their menu, The Monster!



I wish that I could, through the magic of The Internet, send this fabulous creation to you so you could enjoy it. The secret is these round crepe-making hot flat surfaces, in which they carefully swirl the batter.



Then they crack an egg and carefully swirl it around to cover the surface of the batter.

And then they add slices of ham, spices, fresh spinich, mushrooms, onion, red pepper and God Knows what else. Oh, CHEESE! Did I forget to mention cheese?! It's just so Darn GOOD!!

If I lived closer than a twenty minute drive, I swear I would eat one of these every day.


And then after folding over once in half and again into quarters, they even have the generosity of spirit to add a SALAD next to it.

Truly, thing of beauty, and that's just one of their extensive menu of sweet and savory crepes!!!




I will miss them when we leave...hmmmm, must search Philly area for Crepe Restaurant. Note to self....

But if you ever find yourself in Toronto, do yourself a big favor, and catch a streetcar over to St. Lawrence Market. Down in the Lower Level, you will find Crepe It Up...only Love here! Only love...

Wednesday, June 03, 2009

Three weeks & counting...

I can't believe that it's coming to an end. In less than 21 days, we will be on our way back to the US of A. Time sure does fly.

Now it's all about purging stuff that we don't need to move, organizing stuff that we do need to move, and (most important of all) keeping us all happy and sane while we prepare for our move. Oh, and I'm also trying to do a little bit of exploration and have a bit of a long goodbye of all the things that I will miss about Toronto, Canada, when we are gone. And for those naysayers and cynics among you, YES, there are quite a few things that I have come to like, and even love, about Canada since we've been here, and that I will miss very much.

True, the weather is NOT one of them.





I will, however, miss every single one of the teachers at the Boys school. They have been, quite simply, everything I could have hoped for our time here in Canada. They have been dedicated, loving, sympathetic, etc. I couldn't have sat down to create them in my wildest fantasies and come up with any better. They have given the boys so much of themselves, and boys have responded in kind.

True, Cam has been a bit of a pill for the past couple of weeks, but that's for another post.




It's been a great two years for the boys, and my hope is that we will be able to launch our new lives for them in school, and us as a family, with a great deal of clarity of purpose and direction. We know what Kiki and Cam are now capable of. We now need to keep raising that bar for them, so that they can continue to develop and grow from adorable little boys to young men.




I have loved both of my babysitters very much here in Canada and I will miss them both very much.

I have loved having a selection of amazing scrapbooking stores within an half hours' drive from my house.




I have loved having the St. Lawerence Market so close, with such an excellent selection of meat, seafood and this place, where you can enjoy the best crepes I have ever had the pleasure to eat!




I have loved having a heated swimming pool, although we haven't been able to use it as much as we would have (reference the aforementioned weather). We probably won't have an inground swimming pool in our backyard again, at least not at our next house. But I have a lot of fond memories of this one to keep me happy and scrapbooking for a while.




There's been a lot to love about our stay here in Canada. I can honestly say that just about every single person I've met has been courteous and helpful, espcially with the boys. And so proud to be Canadian. They love their country, do these Canadians, as well they should.

Now, if only they could do something about the weather...

Thursday, February 12, 2009

Eight is Enough!!

I can't believe I have an eight year old child!



I know this sounds stupid, but I can't believe it. It was only a couple of years ago that I brought her home from Northwestern Memorial in 15 degrees Fahrenheit weather, without really much of a clue how to care for her. And then she proved me right by not sleeping more than three hours in a row for the next four months. Yup, despite sleep deprivation bordering on torture, I do remember those days. Vividly.

So it just seems so weird to me how grown up she is. She's Eight! You know what comes next? Nine! And then, gasp, Double Digits!!! Yikes!
It just goes by so, so fast....

Sunday, February 08, 2009

My Tips for Parents Just Recieving a Diagnosis

Several times over the past couple of years, we've had friends contact us, and ask if they can give our information to a friend who has just recieved a diagnosis of autism for their child. I guess that means we look like we are doing okay, so I take this as a form of praise of how we function as a family.




After writing this letter several times, to those several different families, I decided that I could just as easily post it to my blog. And if others happen upon it, and find it helpful, all the better!

Okay, so we have three kids, two of whom are autistic. But, before you feel sorry for us, know that, yes, it's been difficult at times. But it's probably not been as hard as some would imagine. I guess I've learned that perspective is EVERYTHING, and I have always felt so lucky for all that we have and are, that I don't focus so much what isn't there.




My husband and I are very good at working as a team together. I'm The Wildfire, out there surfing the web at all hours of the night, looking for the latest research and therapies, and of course I'm also the Chronic Worrier. As a counterpoint, my husband is the Wet Blanket, keeping it all in perspective and working to be the Sounding Post of Reason ("No, that therapy sounds like crap, but I get why you are excited about this one" or my personal favourite "Put DOWN autism book...step AWAY from the Autism Book."---Spoken with the same intonation of the 'Drop The Chalupa' Taco Bell Ad from a few years ago). Very occasionally we have switched places, when Hubby comes at me with lots of worried questions and observations. THAT was disconcerting, I can say--to have to be The Voice of Reason, but nevertheless, it all works out.

There are so many parents who have it so much worse than us. That being said, I know it's tough and I would not wish this journey on anyone. It's just so full of Unknowns, and that (for me) is what is so terrifying.

Okay, so what advice can I give you to help you guys? As I look at this letter, I realise that it's huge. Feel free to pick and choose info as needed. I tend to sound pedantic and From the Soapbox. I'm sorry about that. Please know that I mean no offense. I'm just a passionate soul, especially when it comes to my kids.

1. Don't fear the Diagnosis. It's just a label, and it will get you services. It will open doors to therapies that you (and your whole family) will need. I used to refer my boys as "On the Spectrum" all the time, or as having "High Functioning Autism". Now I just call them little boys with autism. There is no one path that kids with autism take. I've met kids as teenagers who are really cool and collected and wonderfully quirky, who were diagnosed as classically Autistic (low functioning) as little kids. Conversely, I've also met teenagers and adults with Aspergers or PDD-NOS that would drive me absolutely NUTS to be around, they were so controlling, yet they were always labelled as High Functioning and Very Intelligent as little kids, so everyone assumed they would be fine. The label means nothing beyond getting you services now, so don't waste time and energy fixating on it.

2. Find a Parent Support Group in the county where you live. This has been the single most valuable resource to me in navigating the Byzantine health and education systems in, our former home state of Pennsylvania, and I'm sure it's no different wherever you live. There are so many parents who have walked the path you are on, probably not far from your house. Although their kids are likely VERY different from yours, you will be able to benefit from their wisdom, experience, and most importantly, you will quickly learn what services your county and school district will pay for and what they won't. You will also learn how to get certain therapies and what works for others. These therapies may not work for you, but information is your friend.

So, ask around. Pediatricians might know about these types of groups. Special Education teachers at most elementary schools might know. A therapist in the Early Intervention System, or Service Coordinator. Find out if there is a Yahoo Message Board Support Group for your area. Sometimes local churches host these meetings. Face to face support groups are the best, but if they have an Internet component, even better.

3. It's not your fault you child is autistic. I know this sounds logical and silly and most intelligent people know this intellectually, but we have a Christian/Judeo Culture that believes strongly that you get what you ask for in this world. Also, it doesn't help that assholes like this spout their ignorant poison into the air like they are the authority on all mental disorders.

I remember vividly sitting with one of my son's Speech Therapists one day. We had been seeing her for several months at this point, I think he was 2 1/2 years old. Anyway, I must have made some sort of self deprecating comment about my deficiencies as a parent, and she stopped working with Kiki and looked at me.
"Wait a minute, you don't think that you did this to your son--You don't think that this is your fault, do you?" she asked. I tried to wave her off, but she was very persistant, I guess because she could see the guilt eating me up inside. She would not let me change the subject. "I've been studying autism and working with autistic kids for 10 years," she said. "You did NOT make your son autistic. This is not because of bad parenting, or you not stimulating him enough, or anything like that. You did not, could not, have caused these delays."
I started to tear up a bit, because even though I had been working with my little boy and learning everything I could about autism for almost a year at this point, she had clearly hit upon an intrinsic fear of mine. She stopped the session with Kiki altogether at that point and we spent the rest of the hour talking about my guilt and niggling worry that I had somehow done, or not done something with my little one to cause or exacerbate his autism.
I think it's something we, as parents of autistic kids, face at least some of the time, this pressure from society that we just don't know how to properly discipline our kids, as if setting limits and not letting your kid watch tv is the magic cure for autism. It's pervasive, too. Here's Dennis Leary, a comedian I used to love to watch and read, pontificating like some of developmental physician on what the "true cause" the rise of autism is. It's infuriating.

So, while yes, it is true that it's your responsibility that your child is alive, you did NOT make your child autistic. Make sure that you and your spouse have talked about this and are both on the same page, too. Your marriage may just depend on it.

4. You are the expert on your autistic kid. This also sounds like it should be obvious, but it's especially important for parents who are just learning how to navigate the system. If an expert (teacher, medical doctor, psychiatrist, behavioural therapist, etc...) is trying to get you to sign up for a therapy, education plan, whatever, that just doesn't seem right or a good fit for your kid, or even make complete and total sense, and this expert pulls the old "We are the experts--we know what we are doing here" patronizing crap, RUN THE OTHER WAY. Every single knowledgeable professional I've met, be they therapist, pediatrician, teacher, principal, or Indian Chief always comes from the position that no one knows the child in question better than the Knowledgeable Parent. Now, there are exceptions to every rule. There are parents who are genuinely clueless, but I'm betting that you are not one of them. You know you child. You deserve that respect. If you are not getting it, something is off and you need to find a back up plan.

Of course the flip side to this coin brings me to my final piece of advice:

5. You have to make sure that you are the Most Knowledgeable Parent you can be. And this will take some research. I've spent so many hours reading books, magazines, scientific journals. I've gone to seminars and conferences. I've met with therapists and doctors. I've built up quite a database of knowledge of what I think will work for my boys. I've created quite a network of trusted professionals who I consult with whenever questions and problems arise. And I have every confidence that this is what you will do. Perhaps you won't need to do it to the extent that I have. But I strongly recommend that you put the work in on the front end and pull back as needed. I guarantee you, once you have your network there, you will feel so much more confident and knowledgeable when you go into meetings to talk about your child (of course the dreaded IEP meetings come immediately to mind).

What works for us and how it may, or may not apply to you or your child? Please note, that I can only speak from my own experience. I do not believe that you follow our advice completely. But, you have to start someplace, and I prefer to search down paths that others have found helpful.

We use several different therapies with our boys. They go to an ABA based school where they are mainstreamed with a full time teacher as an aid. They are pulled out of the general classrooms about 50% of the time for one on one learning with that teacher. It's ridiculously expensive and it was a compelling reason for my husband to take this work assignment in Canada for the past two years (his company pays for it since the Canadian government rejected my two little boys because they weren't typical, but that's another post for another day). It will be coming to an end this school year when we move back to the USA this summer. We also use a technique called RDI (Relationship Development Intervention) at home. I've included a few of my favorite links below with descriptions of what they are. RDI isn't for everyone.

It's very similar to Floortime in its general philosophy, but with some very specific differences. I've seen some big differences in Kiki in the past year. We are just starting to formally integrate my younger son into the mix.

You work with a consultant with RDI, a certified consultant, whose job it is to help get you as the parent in the right place emotionally and intellectually to remediate your child's autism. I always do a really bad job of introducing RDI to other parents, but I do believe so strongly in it. RDI breaks down the steps to emotional development very systematically. The family works with the consultant, who looks at the child and the family, figures out where exactly the breakdown has been in the child's development, and how to best move him forward. The best part of RDI is that the parents are the therapists, so you find yourself "doing RDI" just about all the time. A big goal of RDI is incorporating the whole family into the process, so you all grow and move forward together.

There is also an online Operating System which you sign onto to upload your videos of progress and work for your consultant to view and critique. In fact, this is the primary way that parents and consultants communicate. I also spend time on the phone or in webconferences with mine. You can also watch videos of other families to get ideas and to watch RDI in action

But there are so many different therapies. There's the Floortime approach, developed by Stanley Greenspan. His book, Engaging Autism: The Floortime Approach to Helping Children Relate, Communicate and Think is pretty good and a great place to start, if you haven't already read it.
ABA (Applied Behavioural Analysis) is the standard of care (as I'm sure you know), with the recommended 40 hours a week. Biomedical is important. As you mentioned you have begun a GF/CF diet. If you haven't read it yet, I recommend the book Changing the Course of Autism by Bryan Jepson It's highly readable, yet very scientifically based and clear on the brain/gut connection. I also recommend finding a good DAN doctor or naturopathic doctor to help with Vit B and perhaps other supplements to help any nutritional deficiencies (DAN stands for Defeat Autism Now---have you noticed the overabundance of acronyms in autism treatment yet?). We actually have just started with this about a month ago seriously (I've dabbled on and off for two years with this but never with medical oversight) and have seen some good progress, especially in behavior and level of attention of both boys at school.

Have I exhausted you yet? I'm sorry if I have. I just wanted to get a good, comprehensive place for you guys to start, if you needed it.
Below are link that I have found to be really helpful. Autism Mommy and Daddy blogs have also been incredibly helpful to me, again with ideas and knowledge building.


The Horizon Developmental Remediation Center
This is a program based out of Michigan, so you would probably not work with them unless you are closer to them. But I love their video and I love the way they describe the philosophy of RDI and they have a great weekly e-newsletter for families with good ideas and articles.

The Connections Center in Houston, TX
This is the main website of the Connections Center which developed and continues to refine RDI. It's full of info and videos. It's a little overwhelming at first, but well worth your time if you find RDI compelling, as I did.

Mom-NOS blog
Fabulous Mommie Blog! She actually turned me on to RDI originally, describing her experiences and understanding of RDI. Love her! Love her blog! Love her son, Bud (not his real name)! Lots of information, if you go the right side bar and look for her keywords, you can find the entries directly relating to RDI. She is also happy to answer any questions you might have.

Jacob's Journey
One of the first RDI blogs I discovered and read all the way through. She does an awesome job of detailing why she came to RDI and how.

Remediating Autism
Found this link on one of my RDI support groups. Looks compelling.

This Mom, one Mom's Walk Through the Tall Grass
Funny. Random. Touching. Inspiring. I really like her, but I haven`t read as much of her blog as others.

Susan Senator's Blog
Love her book, Making Piece With Autism. Love her!! So honest. So approachable.

In fact, that another reason why I love parent blogs so much. By definition, they are parents who wanted to reach out with their stories and experience, so I've found them to be so open and approachable with questions and comments. The Internet rocks!!!

Thursday, February 05, 2009

I may be finished Raising $$ for Autism Speaks, but...

This video that I made to promote our walk is still pretty awesome.



Okay, so why am I finished with Autism Speaks? I just don't know if they truly have the interests of "all" people with autism at heart. They also need to learn that, when you run a "children's" charity (and like it or not, that's what Autism Speaks is), you need to practice a Caesar's Wife approach. You have to make sure your balance sheet is clean and pristine and everything in between.

With an office on Park Ave, NY, and Wilshire Blvd, LA, a private jet and a payroll that is HUGE, they haven't figured that out yet. But they will. Trust me...when they don't make anywhere NEAR in walk donations this next year (and they will be lucky to make half of what they took in the state of PA, let me tell you---there are some PISSED off parents in PA with Autism Speaks and their management) they will start to ask why.

And hopefully, they will LISTEN and really HEAR the answers.
But, for now...my video does rock, doesn't it?